肠癌2-3期患者不要跟医生讨价还价化疗次数和强度的原因
第一节 6年肠癌群经验,肠癌2-3期患者几乎没有过度治疗的病例,只有大量治疗不足导致复发转移的病例。
2015年至2017年间,很多肠癌群活跃着大量装扮成为患者或家属谋财害命的医托和药托,散布了很多的“手术有害论”“化疗有害论”和“放疗有害论”,攻击西医科学治疗肠癌的三板斧,也不遗余力的夸张放化疗的副作用,甚至“化疗化死人,放疗放死人”的谎言甚嚣尘上,以欺骗肠癌患者不要去看西医科学治疗肠癌,而抱着一种侥幸心理听信她们去找“神医神药”“一针消癌”骗人把戏;虽然见到这种医托药托正规肠癌群的群主或管理员都会把这些骗子踢出群外去,但是,这种所谓西医过度治疗的印象就深深的烙在很多肠癌患者和家属的脑海里,所以,她们对术后医生开出来化疗方案总是抱着一种怀疑的态度,而经常有患者或家属以患者身体有什么老人病,化疗反应很大,身体耐受不了那么多的疗程,跟医生讨价还价不化疗或者少化疗;不放疗或者少放疗,医生无奈只有给患者减少放化疗强度,而导致化疗不足而在2-3年后复发转移的。
而犯这种错误而导致复发转移的患者和家属多了之后,群里就针对这个错误的治疗观念加以纠正,禁止群友聊偏方聊神医神药,禁止聊喝中药代替化疗;禁言或踢除该化疗不化疗的顽固分子在群里影响其他的群友;大力科普西医手术、放疗、化疗的必要性和医学机理,讲述以往不手术、不放化疗或少放化疗的患者复发的病例,在群文件里《入群必读!肠癌的治疗和护理、调理经验集成》文件里,“肠癌2-3期患者不要跟医生讨价还价化疗次数和强度”成为大标题;经过几年的不懈努力科普之后现在2000人的群友2-3期患者基本没有一个会跟医生讨价还价放化疗的强度和次数了;
而更多的是在地级市医院手术的患者或家属询问地级市医院化疗医生的化疗方案是不是做轻了?是不是要跟医生商量加重化疗强度,去补救这类不专业的医院医生手术切得不干净的隐患呢?1期术后不用化疗的患者和家属也纷纷在讨论,是不是应该跟医生商量口服卡倍他滨片做预防性的口服化疗呢?因为我们的原则是不能够否定任何一级医生的治疗方案,发现治疗方案不科学,跟代表国内最高诊治水平的十大肿瘤医院的治疗方案明显不一样,我们只能够让患者拿着材料去省肿瘤医院问专家,让专家去评审原方案是否合适,上一级医院的专家医生有专业资格,有能力去纠正下级医院不太完善的治疗方案。
第二节 经过6年每天大段大段的科普解答和《入群必读》文件的详细科普,群友科学诊疗、科学用药、给医生拾遗补缺,科学护理、调理的风气焕然一新。
有关这个问题的标准解答是:“2-3期的患者千万不要跟医生讨价还价化疗次数和强度的事情,医生迁就你了,复发转移吃亏的是患者,而不是医生”!!!群里无数群友的经验是2-3期患者只有治疗不足导致复发转移的问题,而几乎没有发现过度治疗的问题,群里至今几乎没有这类患者化疗过度的案例发生,而化疗次数和强度不足导致复发转移却比比皆是!化疗过度的情况只会出现在晚晚期患者身体机能接近崩溃的时候,在不专业的医院治疗的患者身上;一般化疗前医生都会抽血检查患者的肝功能、肾功能、白细胞、红细胞、血小板指标是否合格,指标合格医生同意化疗的患者基本都适合做化疗,不管他(她)有这个那个的老人病,化疗是清除术后残存在患者体内的癌细胞的关键治疗措施,千万不要跟医生讨价还价化疗的强度和疗程次数,对化疗方案有疑问的就去省肿瘤医院找专家复审一遍!
第三节 术后病理肿瘤侵犯肠壁浅肌层的患者,要不要口服卡倍他滨片的讨论,也因为有几个群友几年前术后没有口服化疗而复发转移,而形成共识。
下列两段文字是从群解答里搜索出来,一字不改直接复制张贴过来的。
1期,侵犯浅肌层的患者要是地级市医院的医生说不用化疗的,肿瘤医院医生一般为了稳妥起见,还是要做口服希罗达卡倍他滨片化疗的,这类患者虽然医生说不用化疗,你也可以叫化疗医生开口服化疗药希罗达自己口服卡倍他滨片6-8个疗程,只要你坚持告诉医生省肿瘤医院这种病情一般要口服卡倍他滨片才稳妥,不口服复发概率太高,医生一般会开口服处方的。卡倍他滨片口服化疗药,现在价格低治疗负担有限,患者反应和副作用也小,肠癌侵犯浅肌层患者一般要口服化疗药做稳妥的化疗,口服化疗药对患者身体的伤害有限,而且都是可以恢复的,这类患者要求医生开口服希罗达化疗6-8次比较合适,地级市医生不开可以自己带着资料报告去省肿瘤医院找专家看,专家一般会开的,她们知道1-2期不口服卡倍他滨片化疗的复发率是多少。
1期肿瘤侵犯浅肌层的患者,我们为什么不口服化疗药去降低10-15%的复发风险呢?这类患者不口服希罗达有10-15%的复发转移风险,在医院和医生来说这个复发率是可以接受的,只在医院的整体肠癌复发率上增加了1-2%的百分点而已,而落到具体复发转移的患者身上,就是100%的复发转移了,就是要命的四期了,这类患者和家属要在询问医生不口服化疗药日后复发转移的概率之后,跟医生商量开卡倍他滨片稳妥化疗的事宜!
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